You Have A Voice
It has taken me until today to write this because I had a horrible experience with the medical supply place in Pueblo. I was treated abusively, humiliated and talked down to. I had already ridden the hour and a half to get there, seen one doctor and in between, went by for us to return the shower chair they had sent us because it was not right. It was made for someone very small and was not one I could propel myself.
The woman at the place when we went in the first time was snide with me but I tried to overlook it. She filled out papers, specifically asked me my height and weight and then did not send the papers in. My doctor called and asked me where the papers were three weeks later. So I called her and told her they were waiting on those papers.
When we returned the chair, we stopped first at the factory part where the woman was and she told my son the man was up at the store. While we were driving there, she called him back to her office at the factory to give him her version. He came back ready to attack and he did. He was snide and hateful and actually told me I HAD to use that chair because Medicaid would not pay for me to have the next one. At that point, I was so exhausted and hurting and just did not have a voice. My son put his hands on the chair and leaned over and said “you mean to tell me that Medicaid says she HAS to use a chair that is dangerous for her and when she falls you and Medicaid will be sued? I do not think so”.
The man started backing up again but then said “we ordered it based on your driver’s license. Son and I both looked at each other. By this time, the man was acting so ugly his face was red and he was spitting droplets as he spoke. He told me to go somewhere else to do business and was leaning in towards my face in anger. The woman at the office is his wife that he is lying and defending. . I looked at him in tears and said “what do you normally use to prepare a wheelchair custom order for a patient? Their driver’s license that is over three years old? or what the doctor sends?” He was so angry at the question and you could tell he did not want to answer me. He looked like he was about to explode and finally spit out “what the doctor sends”. I said that should answer your questions about who is telling the true story then, shouldn’t it.” He finally said he would check into it but he was getting different stories.
I started crying by then and said that chair was to give me independence so my son did not have to push me into a shower and to give me privacy to bath. As he was walking off I turned to my son sobbing and son said “don’t worry. I will take care of it Mom” and he headed straight to my doctor’s office and talked to the woman in charge of ordering it and she was like “no, no, no, we will handle this and get you a new place to order”.
Needless to say I was traumatized and hurt. So, I feel it important to tell people that you DO have a voice and if you are not strong enough to stand up for yourself, make sure someone is with you that is. Let them be your voice, like my son was my voice. There are people out there like this company who abuse and mistreat the disabled and chronically ill. If they will treat someone in the shape I am in like that, just think what they are doing to everyone else.
There is no worse feeling than to feel helpless and abused when you are chronically ill, disabled etc. It is bad enough to happen to a healthy person but to viciously attack someone who is so sick that they spend most of their time in a hospital bed in horrible pain, that is chronically ill and disabled is beyond belief.
I am going to use my voice to report these people when I am stronger but at that time, I had no voice and I felt helpless and beaten down and thank God my son was with me. These people are dealing with the ill and elderly and disabled. How many have they abused before me? It is so wrong and I am going to be a voice that lets the right people know of their behavior.
Never think you have no voice. You do inside you but you also have your loved ones, family, friends that will be a voice for you. I never go into the doctor now without someone with me, which is my son. He is my extra set of ears and he is my voice when I do not feel good.
So, stand strong, use your voice when you have it and when you do not, make sure you have someone with you that can speak for you. And sometimes, you use your voice after the situation, which is what I will be doing. Never, never let anyone mistreat you or be ugly to you. You deserve better and so did I.
image from http://www.socialh.com/page/7/
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