First, a little about myself for those that have not read about me. I am disabled, wear a knee brace, TENS Unit, use forearm crutches for short distance, a power chair for longer distance and spend a lot of time on a hospital bed from pain. Having said that…don’t feel sorry for me cause I don’t. I love life and enjoy it.I believe in sparkling through it all. And if you could see my forearm crutches with rhinestones all over them, you would know.
When someone is sick or disabled, it is a constant fight of the system to get what you need for “better quality of life” depending on where you are and what kind of doctors and health supply companies you deal with. I lived on the western slope for almost five years and had poor care from my physicians who are what I call the “lets wait and see” doctors and a health supply company that was not in it because they wanted to help the patient.
Then we moved to this lovely small town at the base of La Veta Pass and my world has changed drastically. I have gotten better care, have doctors and PA’s from here and specialist doctors from Colorado Springs that come to this little town weekly to serve us and found a health supply company that believes in taking care of the patient, not just in making money. That company is MEDCO and I would not trade them for anything. This is when I learned, thanks to Medicare, to always use a National Health Supply Company for if you ever have to move, they will just transfer you. If you use a small, local company, then you are up the creek without a paddle if you are past the three-year mark with your product as I was with Oxygen and my other equipment.
See, Medicare has set it up where they pay during the first three years you have something like an oxygen concentrator and then the next two years they don’t pay but the provider must still service it. This cost me the use of my 14 thousand dollar power chair that was made for a tall woman of my size. We had just moved to the Western Slope and been here about a year when my good power chair had the electronic arm quit working. The local (and only close) health supply company refused to fix my power chair because they did not sell it to me. And so, the Scooter Store gave me this piece of crap power chair with the seat on a pedestal that was NOT made for a woman of my height and size and is downright dangerous for me because going out the front door in the other house to go down the ramp…as my son test drove it over the little bump in the doorway, it threw my son out. Can you imagine if I had driven that out the front door.
Anyway…I digress. I found MEDCO and they have been wonderful. They replaced, even though I was in the no pay time, my concentrator and brought me portability oxygen after my doctor ordered it. And yesterday, another dream came true. They brought my new hospital bed. The old one had been a problem since the day I got it. It was older than dirt and the wheels fell off easily and the bed had a mind of its own and would drop slowly inches within hours on one end. This was when I got it and it only got worse. And the mattress looked like it had been through the war and was horribly lumpy. My sleep is bad enough but in that bed I was waking up every hour or two in pain.
When I moved here, the other health care company informed me the bed was my problem and handed me a bag of hoses for the concentrator and told me to call them if it tore up and they would replace it. Concentrators should be checked every few months. This one was not checked in a year and when the technician that replaced my old concentrator tested the old one …it was set on 2 liters and only putting out half a liter and it was at 50 percent oxygen. No wonder I felt like I was suffocating all the time.
And so, last nite I slept on my new bed…my dream come true bed. Did I sleep all night? No..but I never sleep all night as pain keeps me up. But, what I did do is sleep for a three-hour straight period of really good sleep and then was up a while and slept two hours more of wonderfully good sleep. And when I woke up…while in high pain, it was a pain level that was a little easier to deal with than the screaming pain I had been waking up with. So, yes dreams do come true.
My son had dubbed me the Princess and the Pea when this blog first started because my pain is so bad that I feel every lump, every tiny bump in a bed. At one time before the hospital bed, I slept on about ten egg crates on top of my mattress. As it was, we put a four-inch memory foam topper on the old hospital bed and it still was painful due to the ever changing levels it was doing.
And I have a bigger dream now and that is to work to get those in charge of Medicare to see that they need to add an amendment to their regulation that says no pay the last two years of the five-year span and change it to say “unless the patient moves out of the coverage area”. I wonder how many people have had the same problem with their equipment that I have.How many have suffered with poor equipment or had to use an oxygen concentrator that was malfunctioning and making us worse? For, unless you are lucky to find a national chain like MEDCO, you are doomed to have that stuff until the five years is up. Sometimes, those in charge do not look at all the angles or problems that can arise and I am hoping and praying that maybe, if they are shown the problems, they will correct it. So, now, I have a bigger dream to work on.
And I am blessed that daily other dreams come true for me. I also have another dream in the medical realm that I am working on and that is to get my good power chair fixed or replaced. Life has been taken away from me because the other company would not fix it and so I am stuck with a dangerous swaying power chair. I go around the house less because it increases my pain and is dangerous in that if I reach up to sit a cup on the counter or pick up something, it tips forward with a resounding bang on the balance wheels and that jar increases my pain level. So, I have on my wonder woman head band and am in fight for your dreams mode.
- Medco Professional Services Corp (workthedream.wordpress.com)
- The Illogical Thinking of Elected Officials (workthedream.wordpress.com)
- The Princess and The Pea Saga (workthedream.wordpress.com)
- Former Scooter Store workers out (mysanantonio.com)
- Scooter Store sues competitor, ex-employees (mysanantonio.com)
- Comfort foods
- Dreams for the future
- Eating Out
- Etta James
- Female Impersonators
- heart center
- helping others
- New Year's Resolution
- Protection from fraud
- Rocky Mountains
- US Military