Simply danLrene

Work Your Dream

Broken Connections And The Web Of Life

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I believe that there is an eternal connection that all living things have in this world and that we have with mother nature.  All living things have a connection because we are alive and we depend on each other for different things. But, I believe there is an even deeper connection…a spiritual connection that joins us in a special way. We can not live without water or oxygen or food and plants and animals need the same type of things. But, we also can not live without that connection on the spirit level.

The old ones predicted what is happening in our world today and all the changes. We have lost our connection to the earth. We come from the earth and yet now we abuse and mistreat the earth and the animals there. And many mistreat the people here. The connection is broken and people do not see the value of life, of the living, of the world and the forces there in. I consider water a moving force and the wind as they are both moving things that our Creator put here. There is a quote that says a country can be judged by how they treat their animals and I have yet to see a country that passes this test. The Native Americans predicted the shape the world is in a long time ago and if we do not find our way back, the world will die on us.

I love sitting in malls or in the park and watching the people there but the last few years what I saw was so few that were actually happy. I saw people disconnected, people with walls up and people with agendas. I saw people who never saw anything good in their world, who spoke with words of negativity constantly and who had narrowed their world to this small square of angst, hurt, anger, pain, sorrow and isolation. People sit next to each other and do not even speak to each other. The connection is broken.

“As children and adults get sucked into cyberspace more and more each day, there is a growing disconnect with the natural world — a trend that is alarmingly negative. We as a species depend on the ecosystem services of the ecosphere. As much as some of us might believe, we do not depend on Facebook, Twitter, Google Plus, television or online gaming to keep us alive.”  Jeff Sayre

Somehow, some way we have lost the knowledge that we depend on,  the earth, the ecosystem and the spiritual connection and we seem to keep mutilating it. Not a day goes by that we do not read of animals being tortured, mistreated and killed. Not a day goes by that we do not read of some place in the world where due to “technological advancements”  we have screwed up the environment and mother nature is rebelling against us with storms and floods and other natural disasters. The connection is broken.

And on  personal level, families are broken apart, children are abandoned, babies are killed, families do not speak, abuse happens, and with cyberspace, we are isolating ourselves more and more as if we think this earth can live on if we never see nature again. There is a connection that comes from knowing we are all from this earth and all from one huge family and that connection is broken. And yet, here we are with our faces in computers and I-Phones  and no real face to face connection.

I hear people say they never speak to this person or families that never speak again, friends that were so close that quit speaking and this connection broken is the saddest to me. For the consequences are so damaging. We as a culture have lost the ability to listen. We are so busy talking and trying to prove we are right that we never hear what the other person is saying to us. And so, the connection remains broken.

“If we continue to move mentally and emotionally farther away from those systems on which we truly depend, then we will fail to appreciate our intimate dependence on and connection to the rest of the world. Our existence may be enriched and extended by our artificial creations, by our technologies, but we must not forget that we are part of a larger Web, we are part of the original Web – the Web of Life.”

March 19, 2016 Posted by | All | , , , , , , | Leave a comment

Are You Running Against The Wind?

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There was a time, when I felt like life was under our control. And then one day on one of those days where I felt like I was trying to move the mountain, I started feeling like I was running against the wind. It was that day that I realized that there really is very little we are controlling in our lives. We just think we are. In reality, the only thing we can really control is how we react to what happens to us.

video from BobSegerChannel

(I take no credit for this video. It is strictly for educational purpose on the content of my blog.)

It is then that I realize that when you have to beat your head against a brick wall, constantly fight to do what you want and feel like you are constantly running against the wind, that perhaps you are trying to change the flow of your life in a way that was not meant to be.

I believe that the Creator watches us sometimes and must smile, just like we do as parents when we watch our children try to put one of those little wooden star, circle, square and rectangle dowel shaped things in the hole and when it does not fit, we will see our child pick up the hammer and try to beat it in to fit. It is those days we feel like we are fighting a constant battle.

Now, do not misunderstand me. I think the good things in life are worth working for, but I think when we come to the point that we are beating our heads against the wall ALL the time to get to where we want or to get something we want, than we are trying to force the glass slipper on like the ugly stepsister did in Cinderella. We are trying to force that which does not fit.  I have learned that sometimes what we wish for is just not meant to be. That is not to say do not try. The wisdom I learned was that if we have to force something even if we manage to “get the glass slipper on”, it will pinch and hurt and not feel right afterwards.

There is the risk you cannot afford to take and there is the risk you cannot afford not to take.

Peter Drucker

So, how do we know when we are trying to force that which does not fit?  I love this quote below for it gives the first hint of what I have learned. How do we know?  The answer is by how long we keep beating our heads against the wall.

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If we find ourselves month after month after month pushing and battling to get what we want, if we find ourselves never making any headway, then perhaps it is time to stop and feel the wind. It is time to feel the current again and see if it was trying to lead us into a direction that is even better. All good things take sacrifice but we have to learn the difference in sacrifice and beating ourselves in the head for something that is not meant to be. And that is a hard lesson for several reasons. One is learning how to know when we are trying to make something happen or make someone love us that is not meant to be. The other part is that we are “self” people by nature and some of us have the “I Want” gene a lot stronger than others and do not know that not all we want is good for us.

I learned this with working our dreams. It took us two years to sell our house and I will have to admit that I was getting to the point at the end that I wondered was I trying to force something that was not meant to happen. As long as I felt happy and excited and it felt right with this decision to sell, then I knew that we were headed in the right direction. But there were a few times at the end that I felt that despair and defeat. It was then, I asked the Creator to please show me and to please tell me was it time to let it go or were we supposed to do this move. And every time I asked, that very day it never failed we would get a call and someone wanted to see the house. That one little sign told me to give it a little more time. And we sold our house and here we are.

“You are not the momentary whim of a careless creator experimenting in the laboratory of life…You were made with a purpose.”

Og Mandino in “The Greatest Miracle in the World”

We all have a reason for being here, a purpose. And learning what that is often takes us a life time because some of us try to force what is not meant to be.  We have stepped out into the river and try to walk against the current and wonder why we stay in the same place.  Time has shown me that we have to allow ourselves to open freely and ask the Creator where He is leading us. That is not easy because it means relinquishing the control we “think” we have. Sometimes we need to stop and feel the current and feel the flow and see if we are flowing in the right direction.
“[The void] It’s that place in our lives where what we’ve been hanging onto….clinging to for dear life….is stripped away. It’s that place in us where we let go of what we know, what we think we know, and what we want and surrender to the unknown. It is the place of saying and meaning, “I don’t know.” It means standing there with our hands empty for a while, sometimes watching everything we wanted disappear; our self-image, our definition of who we thought we should be, the clones we’ve created of ourselves, the people we thought we had to have, the things we thought were so important to collect and surround ourselves with, the job we were certain was ours, the place we thought we’d live in all our lives….Surrender control to the supreme wisdom and authority of God and to the Divine in your soul.  Step into the void with courage. Learn to say..”I don’t know.”  That’s not blind faith. It’s pure faith that will allow God and your spirit to lead you wherever your soul wants and needs to go.”
Melody Beattle, “Finding Your Way Home”

March 18, 2016 Posted by | Inspiration | , , , , , , | Leave a comment

On The Wings Of An Eagle

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I use many things to help me through the pain filled days. Visualization is one of those things. So, let me take you on one of my visualization times when the pain is making just breathing hard. Come fly with me for this is what I see when I close my eyes and all the pain vanishes for a brief period of time.

eagleimage from

On The Wings Of An Eagle

Standing ready, she closes her eyes listening for the sound

She raises arms to the heavens as she edges forward til her toes curl round

The moon  beats down upon  her face and the glow warms her from within

She lets her eyes follow the mountains as they curve around the bend


She is barefoot in splendid wonder, her cotton gown clinging to her knees

The whiteness of the cotton gown slowly rippling like fog amongst the trees

Her hair flows like dark rivers over her shoulders in layers of earthy brown

There is no fear within her as she again raises her face listening for the sound


The moon,a glowing beacon, had risen from the treeline like a goddess in the sky

She had heard her softly say “come darling, follow me, it is once again time to fly

She found herself walking on legs long since withered and broken as she rose to obey

she felt no pain or weakness as the moons glow wound round her legs in soothing play


She grew excited with anticipation for she had heard the call many times before

Silently moving through the house until she finally reached the exit door

Her breathing was shallow and a smile upon her lips as she quietly eased outside

She stood looking to the moon nodding she was coming, as the door left open wide


Now, she stood with toes curled upon the ledge and her arms raised ready to fly

Not one drop of fear around, she waited only for that sound of the familiar cry

She hears them in the distance, the echo of eagle’s cries float into her ears

She raises up on tiptoes, with arms open wide and steps off the cliff with no fear


Falling downward she smiles for she knows the softness of the landing will be sweet

When her body sinks into the familiar softness and she feels the heart begin to beat

She nuzzles her face in closer and lays there in silent wonder cheek to cheek

The power of the beating wings fill her heart leaving her breathless and weak


Looking down she sees the meadow illuminated with the glow of the moon

The animals are scurrying around as if making a magical nature tune

She watches with delight perched high up in the sky as the world flies by

And in breathless wonder, her heart skips a beat as a tear falls from her eye


She closes her eyes for a moment, sighs in deep content with a smile upon her lips

Feeling the power of this body as they make turns and dips and flips

she realizes the gift she is given when she stands on the edge waiting for the sound

As she stands looking with arms raised to the sky, just waiting to be found


He gently sets her back upon the earth as his wing touches her face tenderly

And she sees the gentleness in his eyes that is only there for her heart to see

She feels him say as he looks at her that he will return again, to wait for the moon

The moon will let her know the time and she will return to the cliff very soon


Few can see with the eye of the eagle or soar across mountain tops touched by snow

She used to ask him why she was picked but he told her it was not for her to know

All she needed to know was to come when the moon told her it that it was time to fly

She could hear the echo of hooves, feel the warriors near as he lifted her to the sky


And as she lay on the softness of feathers and caressed his beautiful head in love

Some could only feel his beauty through the thickness of a leather glove

She knew it was a gift she was given to ride in splendid wonder in the sky so high

And feel the presence of heaven so close that the beauty made her heart cry



March 17, 2016 Posted by | All | , , , , , , , , | Leave a comment

The Problem With Whitewashing

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Now, as not all my readers are southerners, some may not understand what whitewash is and why I say it can be a problem. White wash is “A solution made up of lime and water, used for painting picket fences, walls, etc”.  You can just “slop” it on the fence and it covers up the grunge and flaws pretty well.


image from

In life, I call such things as denying what going on in life, covering up things we do not want others to know and sometimes making light of serious situations as whitewash. People whitewash all the time but when it becomes a way of life, then it can be very detrimental to us. The problem with whitewashing is that it does not fully cover the dirt and after time it bleeds through again and again and you have to keep whitewashing the fence.

Before anyone starts, whitewashing has nothing to do with race. It is how we in the south kept those picket fences and sometimes outbuildings looking fresh. You would have this big bucket of white liquid and a big paint brush and you would “slop” it on the fence. What got on the grass would wash off with the rains.

Snow reminds me of whitewash. It can cover all the dirt and grime and make the ugliest house look beautiful. I have watched people do that through the years and deny things like an alcoholic son, being in financial ruin, abuse, an affair, loss of a child, etc. It does not solve the problem but makes things look pretty on the outside.

Let me tell you, that in the old days, southerners especially southern women were proficient at whitewashing their lives.  As far back as plantation days, the women of the mansion would whitewash that their husbands were going into the slave quarters and having sex with the female slaves. And sometimes it resulted in a child.  But, when they came home, the wives put on that Stepford wives face and acted like nothing happened at all. They would deny that their husbands were having an affair with the neighbor’s wife and even invite her to dinner parties and act like nothing was going on. Boy, talk about some whitewashing going on.

When I was coming up, abuse was whitewashed by the families, by the social services, by the doctors, the churches and just about anyone that should have helped to stop it. They just snowed all over that and made it look pretty and as if nothing happened.  Long sleeve shirts covered bruises, keeping children at home hid trauma, telling the children to get a smile on their faces and to never tell what happened is some whitewashing at it’s best. The most perfect home with the perfect children and perfect parents could be a house of hell for children. Just some statistics:

Child abuse is reported every 10 seconds.
5 to 6 children die each day as a result of child abuse or neglect.

That is a lot of whitewashing, is it not?  In the time it takes you to read this blog, we will say three minutes…18 children will have been reported as being abused.  Think about how many are reported in 24 hours.  That is way too much whitewash to cover up and people are finally doing something about it. People are getting rid off the whitewash and bringing it into the public view.

Animal abuse has been whitewashed and the poor animals have suffered. I am talking both domestic and wild animals. They have been tortured, misused and abused and it has been whitewashed for years. The good news is that advocacy groups are now speaking out and making it public. They are looking for solutions to the problem.

Now, how about our own lives. How many things do we whitewash?  Do we whitewash that we are unhappy in our lives? Do we whitewash that we are being abused?  Do we whitewash our feelings and pretend we are fine when we are hurt, angry, sad or whatever emotion we feel is too bad to let the world know we feel that way? Do we whitewash that we are financially in ruins and just living like we still have money? Do we whitewash our illnesses and how bad we really are?

Whitewashing is pretending that our lives are just fine and nothing is wrong. And like the snow…eventually the truth will come through. Whitewashing things in our lives is a choice and once we start doing it, we continue to do it and use it as a way of dealing with painful emotions. We fear being ridiculed, abandoned, embarrassed, judged, etc.

This is some good ole danLrene older than dirt wisdom. I learned these things through my many years of hard life. First, we have to learn to accept ourselves as we are. I look in the mirror and I see myself…I see the gray hairs, the lines on my face and I see that I am getting older and can not do a lot of things. Took me a long time to accept that but I do and I am ok with myself. So, first comes acceptance of ourselves just as we are.

Second comes putting the brakes on how much we let the opinions of others influence us or determine who and what we are. As long as WE know who and what we are and are ok with it, then it really does not matter what those “out there” think. Until we learn to live with ourselves by ourselves, we will never learn to live with other people. And I have learned that when others judge so harshly, they are only speaking what they know from their own lives and are dealing with but it is easier to point it out to someone else.  Keep on being the person that is accepting of yourself, believing in yourself and showing your true inner integrity and feelings and others will soon see you as you do.

And last but most definitely, do NOT minimize or whitewash problems. They are still there when the whitewash starts to fade. Whitewashing problems is like trying to drink your problems away. Instead of whitewashing, step up to the plate and do something about it. If you have a problem, get help.  If you have someone you love with a drinking or drug problem, step up to the plate and confront them and let them know you love them but you will no longer cover for them but you will help them get help. YES, it hurts to do that but it is either that or spend your life whitewashing everything in sight and that is an exhausting job.

There is no greater joy than learning how to help yourself, learning how to deal with and accept things from the past so that you can move on, learning that having a sister, brother, father, etc that is an alcoholic is not because of you. It is their problem and hiding it from the world does not help you or them.  Standing beside those you love is not the same thing as fighting to deny the obvious problems in our lives.

And remember, the fear of what others think or will say about you is like me calling you a garage. It does not make you one. Everyone has problems in life and no one is immune to these problems. Hopefully one day we can turn to each other and be ourselves instead of whitewashing and people will be ready to reach out to help us instead of shoving us further down in the hole. I truly believe this is why there is so much anger and hatred in the world. You can only whitewash for so long before it starts to boil over.

March 11, 2016 Posted by | All | , , , , , , | 2 Comments

Loving Our Imperfect Selves

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I read a blog  where the person was saying they hated to hear people say that chronically ill people should not let their illnesses define them. And a few agreed with the person’s rant. As the person talked about how, when they were healthy, they prided themselves on being fit and exercising, on looking pretty, on being smart and talented and how they hated how they were now. They said that they hated they were sick. And the person went on to say that everyone should be able to know that they were chronically ill and know that they were chronically tired and could not do things anymore. It was almost like they wanted to put a name tag that said their name and then in bold letters stated “CHRONICALLY ILL”.

The person in this blog that I randomly ran across on another blogging site was defining herself and judging herself by what she used to be and so she felt that now she was inferior. And all I could think was “Is that all you think you are worth?”  Do you think the only things that make you worthy are your looks, your muscles and being able to jog, your hair, your work ability, etc.  And she and about five other people truly resented anyone saying that we should not let ourselves be defined by our illnesses. I personally believe that we have to learn to love our imperfect selves.

Boy, they would hate me because I do believe that we are more than our illnesses.  I am Deb….What I am is disabled and chronically ill but who I am is what I choose to be inside.  My name is not disabled. It is not chronically ill. It is not COPD, Fibromyalgia, Neuropathy, Sarcoidosis, Seizure Disorder, Hypertensive Heart Disease, Blood Clotting Disorder,  Cystic Lung Disease, Kidney Disease,  GERD, IBS, Degenerative Disc Disease or Joint disease, Spinal Stenosis, Osteoporosis, Osteopenia, Osteoarthritis, Chronic Fatigue, Autoimmune disorder, pernicious anemia, Lipidemia, Thyroid Disease,  or any of the other things I have wrong. My name is Deb and yes, I am disabled and I am chronically ill with all those things wrong and many more but they are what is wrong with me and not the person I am.

Sometimes I think people who are chronically ill can let themselves become cloaked with their illnesses and almost wear them like a badge. And that is a cloak that can get very heavy after a while as they keep attaching more and more importance to what is wrong instead of what is right.  Perhaps this is why I have survived as well as I have because I do not focus on all that is wrong. As I have said before, I leave dying up to God and I focus on living.  I focus on the good in each day. I live, even with the really bad days, with hope in my heart that the next hour or day will be better. I refuse to let what is wrong consume me and keep me from living life. Remember victims focus on all that is wrong. Survivors focus on solutions.

I have learned through my older than dirt years that some people can allow their illness(es) to take their lives from them and there is no room for anything else.  While I may read about new approaches to the things wrong with me, I would venture to guess that I spend less than two hours or less in a day concentrating on what is wrong with me and that includes such things as taking meds, breathing treatments, etc. If I cloaked myself with a badge of Chronically Ill, I would be spending every minute of every day tied up in illness.

My days are filled with writing, family, talking to friends,photography, dreaming and remembering wonderful things, laughter, my sons and granddaughter and most of all love. And most of my day is spent on this hospital bed in one room. And yet, when asked, I can honestly tell people that my life is very full and very happy in spite of all theses things. Yes, I have days and sometimes weeks where I am having to make trip after trip to the doctors or hospital but I still rely on my ability to distract myself from the medical like taking photographs as we ride up or in the hospital. I have learned to love my imperfect self and learned that just because life has changed and become different for me, that different is not necessarily bad.

And I think the difference is that I believe that what makes me Deb is more than my ability to walk which I lost, more than my ability to work which I have not been able to do in over twenty years, more than my ability to keep physically in shape which is a dream long gone, more than my ability to go out and visit people which is impossible for me now, or more than how pretty I look or how much I can dress up or any of the things I lost when I became so ill. If that is all that makes me worth while, then I must be worth a big fat zero right now. And I do not think so.

I refuse to give up or give in. I smile a lot and have had doctors say “Wow, you do not look like you are hurting that bad because you are smiling.” And I tell them that it is a choice. And then later, they will ask me how I stood so much pain because of what was wrong like the severe stenosis from head to tail, the neuropathy, the torn rotator cuff, the collar-bone out-of-place and ribs out-of-place, etc from falling. I choose to smile and be happy.  It did not take my pain specialist long to learn just how severe my pain was and that it was debilitating and I did not have to tell him. I did not have to act like I was miserable and dying of pain. He could see it in how I handled my pain and it makes me feel really good that he admires my attitude and my determination.

I can not go places to visit people or  do things outside like my flowers and so I had to learn a new way. Now, friends, even those chronically ill but still able to get out and do things, take me with them via camera. A dear friend in the UK took me to the beach there and walked camera..into the water. That was such a wonderful thing. She shares photos of all her travels with me.

Another dear friend  takes me places by camera as she traveled. She also takes me to the beach and walks out into the water so that I can hear it and see it and feel it in my heart. And boy does that make me smile. I can not go visiting and so I visit by Skype and it is like having them in the room with me. I have my red high heels and my leopard cape and I can feel quite classy and entertain here from this bed and be happy.

A friend in Italy and I were talking about this one other day how some people let their illnesses consume them and then some are like I am and have accepted what is wrong and find new ways to find the joy in living.. Those closest to me know that the more I joke, the harder I am fighting. It is my MOJO and my way of living with chronic illness. My value does not lie in what I can not do or how I look. It lies in what is in my heart and my head and in my actions. The diseases do not make us who we are rather it is what we do with the illnesses that make us worthy. If your choices are not working and you are miserable, then make different choices. That is the right we all have.

Someone told me once that I made being chronically ill look easy because I seemed happy. I told them to not be fooled into believing that it was easy. If a person starts having limitations or illnesses and finds themselves miserable but are still able to go out, to be about and around in their house, and while limited…can still function in life and take care of themselves but are miserable because of those limitations that they have now, they would be dying in misery if they were as sick as I am.

When you get this ill, you lose control of your life to others who come in to help you. Your privacy is invaded by helpers who help you bathe or wash your hair or help you dress or fix your food or fix your meds.  It is my choices that makes it look easy. My choices to choose happiness over bitterness and sadness about my illnesses and the things I have lost.

And I have had some tell me how bad life is and they just can not find a way to be happy and feel worthwhile. They tell me that they just sit there in their misery and I ask them “How is that working for you? Evidently it is not working too well if you are sitting there in misery. If you do not like the choices you are making, make new choices.”

We are all victims when chronic illness hits but we do not have to stay victims. We can choose to become survivors (and even thrivers)  in that we survive emotionally. No matter how much chronic illness takes from us physically, it does not have to rob us of our joy and happiness in life. It does not have to rob from us emotionally.  See, I view life through the end of the binoculars that makes everything look big and beautiful. Some view it through the end that makes the world look small and bleak.  Just change ends.

We have to learn to love our imperfect selves because no one is perfect. And if we do not love ourselves, then how can we expect others to? The people you see that you resent because they are healthy and well, may not be as healthy and well emotionally as you think or may be struggling with financial crises that you know nothing about. No one is perfect.  Love your imperfect self and make choices that bring you joy not misery.

March 9, 2016 Posted by | Inspiration | , , , , , , | Leave a comment

The Truth Is…

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Times are horrible economically all over. People have lost jobs, lost homes and more.  And yet, at times people have a hard time admitting that life is different. Son and I saw a few years ago this coming. We were lucky that we did and we started paying off bills we owed and trying to get down to basics. And we managed to get where we are, in a much smaller house that was a repossessed home that needed repairs. But, we had exactly enough from the sale of the other house that we could afford to buy this house.

We have become a country of over extended credit card families. When we look back at our ancestors who, if the money was not there, then they did not buy. Then look at today and we see people with credit card debts and loans of ten, twenty and thirty thousand dollars and more. Few people plan for an emergency such as losing a job. When son was laid off a couple of years ago, had we not already been working on this contingency plan and had already put our house up for sale, we would have lost everything. We were late in planning for something like this but did at least have a head start on it and were able to get where we are now.

The truth is, many people live what I call “entitlement” lives and that has nothing to do with race. They over extend because they believe they are entitled to have this or that or go here or there and get in way over their heads and do not see past today. The most important thing should be keeping family together even if it means giving up things.  I am sure by now, I have some people gasping and thinking I can not live without my I-phone, I can not live without two cars, I can not live without being in this big house or the fancy clothes or eating out all the time. And the truth is YES, you can. It is a matter of deciding what is important.

Son and I decided that the most important thing was family and being together no matter what size house, how many cars, what kind of cell phone or how many times we eat out or if we have Niki shoes or any other name brand. We are on a pay as you go cell phone plan and seldom use it. We moved to a smaller, less expensive house. We moved to a small town where there is less driving. We seldom eat out if ever. We are just very conservative and conscious of what we spend because we wanted a less stress filled life and being better financially helped in that department.

The truth is we have to be in charge of our lives and that includes how we spend and the risks we place ourselves in. The economy is not solvent and we can not be assured of tomorrow. No one can. So, we have to prepare for that by cutting back, by not spending unnecessarily, by conserving where we can, and by not over extending. And that includes having an emergency fund that is put away not to be touched.

Many think their children will not be happy without all the fancy things on the market now and the truth is, I was a single parent with limited money and had two sons that I was raising and we had very happy times. We made our fun at home and we did family things together for entertainment. Children can be happy without all the I-phones, designer clothes, fancy electronic equipment, etc.  It is all a matter of choice and what you teach your child is is how they will respond to economic crisis that are occurring and keep occurring. Make a choice to look at finances, look to see what you would do if one of you got sick and you had to have a big amount of money to get tested or see the doctor or what you would do if you car broke down. I can assure you that having a plan will lessen your stress in an already stressful world.

March 8, 2016 Posted by | Inspiration | , , , , , , | 2 Comments

Do You See Past The Cover?

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I was reading this blog one morning and that blog sparked this blog. It always amazes me how I can read something and instantly my words start to form in my head. This story is especially good and I hope you will go and read it. It is about helping someone and about judging others when we do not know the whole story and how we could help someone struggling if we just took the time to look.

This blog made me think of how I am always saying I am Deb…I am not my diseases. And yet, many will look at me and see nothing but my disabilities or my chronic illness.  And I am sure many that are chronically ill can identify with this. And many look at me and see the strength I hold on to, the courage I use for each day and my survivor mode and think I am just fine and need no help. Both are right and wrong.

I have to wonder though how often we do that in general and not just to the disabled or chronically ill. Do we look at the homeless and only see that they are poor or dirty or wearing ragged clothes and never see the person inside all of that? Do we look at the blind and not see what is inside that face and mind that holds so many treasures to tell? In general, do we look at the exterior and never take the time to see what is going on or what is the real story?

I became fascinated with the documentary “Grey Gardens” and what has fascinated me is that so many have watched this documentary and very few come away with the true story. They only see the dilapidated and dirty house and all the cats and raccoon messing it up and do not see these two strong and talented women who are survivors. They come away making comments about how filthy they are and how they must be mentally ill and I think how sad to watch the documentary and miss the whole point of the show. It is sort of like the person you ask to read something you wrote and tell you what they think of the story and they immediately start correcting your grammar and punctuation while they are reading instead of reading the content. And by doing so, they miss the whole story.

I have watched these documentaries over and over and come away with something new each time. I see a mother and daughter dynamics and their ability to adapt and entertain each other to survive all those years on very little money in the middle of the Hampton’s with all the rich family around and no one comes to help. I see two people abandoned by family, forced to live in poverty and even get to the point they have no money to have their trash picked up and yet, they manage to survive and to find joy in their lives.

I see a daughter who kept her dream alive by putting on performances day after day for thirty to forty years for her mother. Can you imagine? And she finally got her dream to perform in New York when she was in her fifties.  Was she a famous singer then? No, but she finally after all those years of living in that old house, not having any support and just trying to survive was able to say she got to perform. And a mother who kept her daughter by her side by continually encouraging her to do these matinée performances in the house where they were recluses. The mother was almost 81 when she died and after she died, Little Edie left that house and moved to New York where she did get to do her  singing and dancing.

And yet, many people could not see that they were survivors, could not see their sense of humor, could not see their ability to adapt to some horrible conditions, .could not see that this was two women who came from times where servants did all the work and they were never taught to clean or take care of a home so did not have any comprehension on how to do it, could not see Little Edie’s unique sense of style that she created herself. They never looked past the first clips and saw the news reports and the pictures of a dilapidated house and trash. And they judged these two women and the documentary on that.

And so, I wonder how often do we walk down the street and pass judgment and never look to see the real person. How many people on the street do you glance and walk past thinking they are strange or dirty and never look into their eyes and really see them. And if any speak to you, you shy away and rush off?  If we never take the time to look at people, we will not see anything but what is on the outside. We will not know that this person who seems so rude just lost a family member, or that person who rushes by really has lost their home. Or that this woman who recoils from you has been raped and is terrified, or another person is afraid to be alone. All these things make us who we are and yet we do not take the time to look for the person behind the facade and see that in others.

I loved this video because it says what I wish I could say. There are so many lonely people in the world and yet so many will never make the effort to reach out. I have heard “Well, I have my own life to live.”  And that is true but we do not live on an island. We are part of this world and if nothing more, we can make it a little brighter for those in our tiny corner of the world just by caring and speaking.

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How often do you speak to those you see? How often do you jump to judgment without even knowing why a person is behaving the way they are?  And if you say never, then you better go take stock again because we all have. We have all at some time in our lives looked at people and said “Boy, they are crazy” and the truth may be like the blog I posted above and they are not crazy. They just need a friend. How many times have you laughed at or made fun of someone strange on the street. I have before I became disabled and have felt shame afterwards.

I have a friend that did that. I could be so sick that I could barely even lift my head or read on the computer laying here but would not tell those around me via internet, etc how sick I was and she would know. She would instinctively know by how I typed. She listened and she really cared. It was not fake concern. It was real listening and really caring about another person. It was truly wanting to know how they were.

And today people are so caught up in the busy busy world or have their faces in their cell phones and never take the time to look at the people around them. I have had strangers when I reached out and touched their shoulder and said “I am so sorry you are hurting so. I am so sorry for your loss” and they asked me how I knew and my response was  “Because I have been there.”

We have to reach past ourselves and our troubles..that is how we get through them each day. If we reach out and help someone else, our troubles seem to dim and life seems a little brighter. But, if we focus only on “me, me, me” and portray ourselves constantly in a pitiful light, life seems so hopeless. It is a choice on what we choose to focus on.

If I want to inspire someone, I try to let them see me overcoming not succumbing to my hurdles. I show them me fighting to keep going and crossing hurdles not me slumped in my power chair. I let them see me doing things I have not been able to do before I got the power chair, not all the things I can not do because I am in a power chair. And because of all these things I have been through…I pay attention to those around me and I notice the hurt and the pain others have and their joys and triumphs and I try to reach out to them because most of us know what those things feel like. We have let the media, the world, the internet desensitize us to the suffering in the world and maybe it is time to step away from it for a while.

March 7, 2016 Posted by | All | , , , , , , | Leave a comment

It Is All About Attitude

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Those of you that know me well and know what I deal with know that when I talk about being a survivor, it does not mean getting well. There is no cure for what I have. Survivor is an attitude. Survivor is mojo for me and mojo is attitude and a refusal to give up or be defeated.

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Being a survivor means that you do not allow your illness to rob you of being happy, of choosing to be happy or of having joy no matter how small your world has become. That is a survivor..choosing to be happy in spite of, choosing to find good in your life, choosing to make the most of your life and choosing to help those behind you that are sick. I owe my sons and my grand baby that effort. As someone so wisely told me, it is not all about me. There are many much worse than I am and many who have yet to become ill.

Many people have built walls around themselves and have designated that this is how it will be from now on. Survivor means that we take the walls down and we create our world. I live mostly in my room on a hospital bed with real wooden walls…but you know what?  I have torn those walls down mentally and  I have traveled to England and walked the shores there with my feet in the water, seen the castles and walked paths all over the world. I have been to Australia, to Canada, to South America, to Europe, to Italy and all over the US and all from this hospital bed. And how did I do that?  I did it by choosing to make the most of my life and choosing to see myself as a survivor. I found new ways to do things instead of being stymied by being chronically ill. Some people are so walled into seeing all they can not do that they have effectively walled themselves into the life of victim and will be one the rest of their lives. Take the walls down. Life is still there. You just have to do it a different way.

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Sometimes people can think they are the only ones that have it as bad as they do and when I see that, I am reminded of the woman with the 60 pound tumor. What a fighter she was. When I get a new diagnosis or have new surgeries coming up, my son and I look at each other and say “Well, at least it is not the 60 pound tumor”.  It is what we call keeping it in perspective and realizing that things could be a lot worse. I just had surgery and surgery for me is very risky. But, I went into that surgery believing I would make it and that I still had a need to be here to serve the Lord.

Every day, I had life choices to make. Did I really want to have surgery knowing I might die? What if I died and the piles of things were too much to fall onto my son? What if I made it through surgery but had a stroke or heart attack during it?   Those are life choices and it does not just include me. It includes my son who has been my caretaker for about fifteen plus years now. And so, I have to think about this and have to find solutions. Victims do not think about how they affect others or what their actions do to others. I am a survivor and so I think about these things.

So many of you have inspired me to keep fighting and to be the survivor I am. You have sent me things to encourage me to keep dreaming…like the coin necklace I got from one of you that says “never give up your dreams..they are yours”  or the crooked wooden cross made so you can hold it in your palm that was given to remind me to keep God close, or the beautiful angel that was hand-made and had dolomite as the body which is healing, or the bear necklace that mama aunt sent me and all the bears were made of crystals for healing, or the red heart to remind me that we shared the blood of warriors, or the cards so many of you sent saying don’t give up…keep fighting and even more touching..the ones that said I inspired you to fight. See, we help each other in this battle and we encourage warrior traits in each other.

I think some of the biggest differences when I changed from victim to survivor was that no longer was the story “all about me”.  I suddenly started having an awareness of those around me and what my sickness did to them. I started valuing my time with people because I did not know if I would be here to see them again. I started realizing that my attitude was being watched closely by those around me and whether I wanted to be or not…I was being a role model for someone and I did not want to model being a victim to them. I wanted to model what being a warrior, a fighter..a survivor was like.

“Going from victim to survivor has to be a conscious choice, because often times as we suffer through “victim-hood” we rarely realize we’re doing it. We grow so accustomed to the misery of our victim mentality, we forget that we are making the conscious choice to live life this way.

Many people prefer to remain a victim because working towards healing and living a proactive life is difficult. It is not any more difficult than remaining a victim; both present challenges, yet one choice has a much more favorable outcome. Choosing to remain a victim is like refusing to move off a beach when the tide comes in. You know it will come in and pummel you with waves. You know that you might even drown, but you just don’t feel like moving.”  Hayley Rose

Why is it that some people seem to move on to becoming a survivor while others remain in the victim mentality?  From what I have read and experienced, some people get so used to being the victim that they prefer staying there because it is familiar. Some enjoy the attention though that can turn sour after a while as people tend to get tired of victim mentality. And, some just do not know how and need encouragement from those who have been on the same path ahead of them.

How to Move from Victim to Survivor By Hayley Rose

1. Being a survivor is a conscious decision. It is not something that just happens.

2. Make the decision to no longer sulk in self-pity and feel that the world is out to get you when you experience disappointments.

3. Instead of being miserable when things don’t go the way you wanted, ask yourself what can you do now?

4. Don’t immediately give up and start wallowing in grief. Keep working towards your desired outcome no matter how many times you get rejected or have doors slam in your face. This applies to life’s challenges as well as facing the long and emotional road to recovery after being the victim of a sexual assault or trauma.

5. Being a survivor is a state of mind. A survivor keeps going in the face of adversity. A survivor must cultivate the tenacity of a tired hiker on a steep hill with no peak in sight.

6. Although it will feel like an uphill battle at first, as you move consciously from victim to survivor you will begin to see small improvements and over time, it will change the entire quality of your life for the better.

It is easy to fall into all the trappings of victim mentality.  Some people think life sucks, while other people love it. This is the same difference between living your life as a victim or a survivor. It’s all about attitude.

It is all about choice. I had to laugh today as Dr. Phil was telling a woman who was choosing to remain a victim how to overcome that and begin becoming a survivor. He would state similar to what is above and the woman would say “But, it is just so hard. I do not know how to do it”. And after about the third time, Dr. Phil started tapping his microphone and looked up and said “Is this thing on???? I just told you” That is what it can be like when someone just does not want to give up being a victim. It is all about choice and she was still choosing the victim role. And you feel like your words are falling on deaf ears (or the microphone is off). That is when it is time to move on and let them figure out what they really want. Helping others is important but you can not drown yourself with people who do not want to be better.

March 6, 2016 Posted by | Inspiration | , , , , , , | 1 Comment

When Is Lying Ok?

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I was recently in a conversation about when is lying alright. As many of you know, I believe a lie is a lie is a lie but on the same hand, there are times everyone does it for different reasons. I am not talking about evil, malicious, manipulative lying to enable someone to gain something. I am talking about the kind of lying we do such as when someone wants to know how their singing is and we say “oh it is wonderful” but we know in our hearts it is not. And realize that by this simple lie, we may be the cause of someone going out and singing in public thinking that they sing wonderfully when they do not. I am also talking about the lying by omission. We just do not tell people things for many reasons and lying by omissions is still lying and yet the reasons behind this behavior helps bring understanding if nothing else.

I hate lying especially when it is done to defraud others or to be malicious or hurt someone. I am not talking political lies, etc. I am talking personal lies about personal things here. But, I also at times have lied by omission. I do not tell people how sick I really am at different times and my reason is that I do not want to worry those I care about, I do not want to burden those I care about and because I know some people just do not want to hear it. It intrudes on their world and makes them uncomfortable. I am not the only one that has done this.

Our society has created situations where people feel they have no choice but to lie. I mean seriously, look at the “don’t ask, don’t tell” policy the military had. They forced people to lie about their lifestyle. There is a judgmental group of people in the world that criticize everyone and everything.  People who are different in their lives, their views, their actions are put on the chopping block if they allow people to see them as they are.  And so they lie by omission and just do not tell those close to them or they lie because they fear losing those they love, they fear rejection, they fear condemnation and the list goes on.

I am not sure why people think they have the right to judge others but it has seriously affected the lives of many people.  Children will lie or simply not tell about being abused because they fear the repercussions. Children will lie about doing something because they fear punishment. Women raped will often not report it because of the fear of how they will be judged and fear of rejection. People who are gay, trans-gendered, etc will often hide who the real them is because of fear of rejection. People with chronic illness will try to hide it from the general world because they fear people not wanting to be around them or fear losing their jobs that they are struggling to hold on to. Women who have had abortions, no matter the reason, will hide it because they fear condemnation. People on drugs or are alcoholics will lie about it for fear of hearing condemnation. People will lie because they do not want to hurt another person by telling them that they look bad or their singing is not good, etc and the list could go on.

I said the reasons might help us understand better why this happens. And those who say they never lie, are lying to themselves. Anytime you tell someone an outfit looks great on them when it does not, you have lied. Anytime you say you are fine when you are not are telling a lie. There are little lies that happen daily and they happen because people “fear” the consequences if they tell or show the truth. That is so sad to me that we can not be exactly who we are because we fear what others will say or do.Telling the truth does not have to be harsh and hateful. If someone asks you if an outfit looks good on them and it makes them look huge, simply say “I really love the other outfit more. That one does not compliment you.”

And so, when someone lies to me, I have learned to stop and ask myself why are they lying. If they are lying out of fear, then I try to talk to them to let them know that I will love them no matter what. If it is out of selfishness, manipulation, evilness, etc, then they are gone from my life. I have learned to stop and ask myself why before I react and go off like a time bomb. I think it is a thing called compassion that is lacking in our society, compassion for others. When we have compassion, then we seek to understand why instead of judging, condemning and other acts.

And so to answer when is lying ok?  Never.  But, when is it understandable?  When it is done out of fear of hurting someone, of being hurt, of losing someone, of being attacked, of being abandoned, of being rejected, etc. Our world with the wide web internet has made lying so easy for people and made judging and attacking others so easy. So, when you realize someone has just told you a lie, stop and figure out why they told the lie. And talk to them about it. My sons knew growing up that the one thing I could not stand was to be lied to. They would come tell me they got in trouble before anyone else could and they knew that while they might get punished for doing wrong, they would most certainly not be punished for lying.

March 5, 2016 Posted by | Inspiration | , , , , , , | Leave a comment

A Flash From The Past

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First let me answer the questions. This is simply danLrene’s son. Yes, Mom came through surgery really well. They did three procedures on her and it will take her a few weeks to recuperate but she is hanging in there pretty well and sleeping a lot. They removed the tubes and took out the stitches and now it is just healing time and quiet time. She really does not feel like doing much so I am going to post the blogs she has ready for the next days.

This morning she wanted me to post a blog for her and we both thought this one was so cute as it was written shortly after we got our Daisy three years ago. We hope you enjoy as it made us both laugh remembering. This vlog is from 2013 exactly three years ago today.

Some Days

Some days it can feel like you are in the twilight zone. I was laying here taking a little nap with Daisy laying beside me. I laid my dentures on a napkin on the little side table. I am not sure how long I slept but when I woke up…Daisy was sitting on my chest and looked like this. And yes, this is a picture I created to show what she looked like.

daisy denturesI laid there looking at her with big eyes trying to get my brain to go in gear. I thought maybe I was still dreaming and was seeing some alien Daisy or that my meds were messing with me. And then I realized that she had my dentures in her mouth. I was afraid to yell for son. I was almost afraid to move but I realized I had to before she broke them with here little teeth. They were laying stacked on top of each other just like you see them with the bottom ones upside down and that is how she picked them up.

Meanwhile, still thinking I must be delusional or something, I gently got hold of her and took them out of her mouth. And then I started laughing and could not stop and she thought it was funny and started chasing her tail and jumping around. After I got over the silly giggles, I thought ”Oh my gosh, that was close and scary too”.  I took them to the bathroom for a good sterile soak. And now she keeps trying to get my mouth with kisses and I told her “Ohhh,  no mam, you are not getting them again.”  I am still giggling about this and will for some time.

Oh, and someone asked me why we got a dog from back in NC. Well,  the reason is that we are southerners and we needed a southern dog so that she would understand when we called  “Daisy Mae, ya’ll come here now..ya hear”

March 4, 2016 Posted by | All | , , , , , | Leave a comment


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