Simply danLrene's Opinion

Work Your Dream

Living Your Life

simply danLrenes opinion

Living Your Life

It is nights like the ones I have been having with pain so high that I can not get eased off to sleep that people’s question to me on how do I stand this come back to mind. I lay here last night pondering that and realized that how I stand it has a lot to do with my faith and a lot to do with my believing that I have a life to live and I am going to live it without constantly complaining about it. I may not live it like many of you do. I may not be able to go out and travel or to stores or even out to eat like others do but live it I do. And I live it looking for joy in my life as it is. If I do not do that, then I will never find the joy because extreme pain and sickness will rob me of that.

I learn to adapt and create new ways to do things. I have had one truly amazing travel experience in my life some years back and that was to Italy and I was on forearm crutches at the time. It was a hard trip but a most wonderful experience. Today I can not do that but I can revisit Italy by watching videos of Italy. I have two choices. I can enjoy an alternative way of seeing Italy or I can lay here in bitterness, anger and jealousy that others can travel and I can not. I choose the first. That trip is so memorable to me that I can actually close my eyes and go through the whole journey and feel and taste and smell all the wonderful things. I can taste the cappuccino and smell the caverns we went into. It is imprinted on me.

Adaptation is so important. I can be angry I am in a hospital bed or I can learn how to do things a little different such as reclining in my power chair or laying on the couch when people come to visit. And if I am too sick to do that, a short visit by them in my room gives joy. I have a life to live and I have but ONE life to live and I am going to live it to the best of my ability and be grateful for every chance I have to experience things whether it be laying back in the vehicle while son drives me through the park to see the lakes, etc or i is laying back in my power chair to watch him to the flower beds or something as simple as talking to my loved ones on the phone. It is choice and it is acceptance that at the moment I do the best I can. If there is a road block on the road because the road is out up ahead, do you just try to drive through it or figure another route?

I remember reading a quote that said life is like a camera. If you do not like what you see, then change your focus. I am extremely sensory and that is one of the things that brings me pleasures in some ways and crashes me in others. Too much of a good thing can be bad for us. I love smelling the food when my son is cooking and my door to my room opens into the kitchen. I can see my son cooking and smell all the things he creates. I may not be able to eat it, but I can enjoy smelling it. Laying outside, which is so important, allows me to hear the birds, feel the breeze on my face, feel the sun and just take in nature. I spent an hour one day just laying there watching a bird build a nest. I loved it.

We all have just one life to live and we can either look for the joy or live it in misery, anger, jealousy, etc. I choose joy.

June 25, 2017 Posted by | Inspiration | , , , , , | 4 Comments

Pain

PAIN

Today is a topic that I know a lot about….Pain.  I would say many know what pain is but many also do not understand that pain is relative to the person and what is causing the pain. Some people have no pain tolerance and what may seem minimal to one person can be horrific to another. I love my pain specialist for he understands pain totally. He sees them as blocks stacked up on top of each other and while he can not make me pain free..not even close to pain free…he can ease some of my pain by removing one or two of the “blocks” of pain such as when he does the Radio Frequency Ablation on my spine to try to ease some of the horrific nerve pain.

I think people have to be very careful with their words because words have a lasting impact. I hear people say things like “My disease pain is worse than cancer pain.”  It might or it might not be. See, all cancer does not cause pain. I had vaginal carcinoma and it was not painful but it could have been deadly. But, cancer can produce some of the worst pain possible and if you do not believe it do some research. Some people are dying from cancer in such extreme pain that in my book it is torture. So, for a person with a disease to say my pain is much worse than cancer pain but are up walking around, going out, etc is ridiculous. When a person who can walk, who can go out into the world, can take care of their basic needs feels the need to minimize something as horrific as end stage cancer pain, something is wrong. We do not have to tear down another person’s pain to try to validate our own.

Many have this false idea that if they go to a pain doctor that the doctor should be able to remove all pain. I have a pain management specialist and the most he can do is get mine down at times but never makes me pain free. I live with what I have to live with and sometimes that means laying in my hospital bed all day not moving because even moving throws the pain over the top. My pain is never below a 5 which is considered disruptive pain and this past year hoovers around an 8. I also accept that I will never be pain free. I would not know how to act if I was.

Please remember when you look at someone with pain that you do not know the whole story. And please do not denigrate one group of people with pain just to try to validate your own. It makes you look bad. If anything, pain should make us more compassionate towards those suffering with pain not more critical to where we feel like we have to prove how bad our pain is all the time to everyone.

The reality is, those that do those kind of things to try to prove their pain is worse than anyone else only make others look at them with skepticism for  many have lost loved ones to cancer who died in horrific pain. So, when someone says “my pain is worse than cancer pain” but they are still able to care for themselves, feed themselves, dress themselves, etc, it makes those who are truly suffering extreme pain and dying of cancer look at the person with skepticism. Words are powerful. And when someone questions them, the reply is “Oh, I always smile even when in pain.”  When pain is the level like with those dying of cancer in agonizing pain, there is no smiling. I too am a smiling person but when pain reaches a certain level, I can not smile, laugh or joke. I become very quiet just trying to ride through it. I vomit from the pain, can not eat from the pain, can not take care of myself from the pain and need help to even get to the bathroom. Words are powerful but so are your actions and if your actions do not match your words, people will be skeptical.

We need more love, more compassion and care and less competing for the title of who has the worst pain. It is not often you all will see me talk of my pain on here because I prefer to just deal with it but when I do talk about it, it is to give an example of what I am trying to say not to complain about my pain. I prefer joy and happiness and love and compassion. I love things like my son who tells me “hugging thoughts” when he knows my pain is so high that I can barely stand my clothes touching me. I love watching and talking about happy things instead of spending my day talking about my health. But then again, I have that faith that I know I will not die a day sooner or a day later than is intended by God. My faith carries me through a lot.

My post with the pain scale chart:

https://workthedream.wordpress.com/2011/12/16/how-to-use-a-pain-scale-chart/

May 1, 2017 Posted by | Inspiration | , , , , , | Leave a comment

About Me

Today this is about me because I want you all to know what is going on. Most on here know I am very ill and have a lot of health issues. This impacts me from writing every day like I want to.

So, some days I may not get a post up but I am still here. I now have along with all my other health issues, spinal cord problems. My spinal cord is being restricted badly and while surgery is an option, there is doubt I would make it through it and if I did, I would be paralyzed from the waist down.

The pain really impacts me and some days all I can do is lay here like today. So, please don’t give up on me when you do not see a blog post. I am still here, just having to rest and not move.

So, my personal opinion for today is, we have to take care of ourselves first or we can not help anyone else. 🙂

April 12, 2017 Posted by | Inspiration | 4 Comments

Religion

simply danLrenes opinion

I am a person of faith between me and my creator. I have said for a long time that I am not an advocate of organized religion for they become man-made organizations. If you read the gospels, you will find that Jesus did not send his disciples out to build big churches. He sent them out to spread the gospel and in turn create more disciples. He also warned his disciples going out not to call themselves Rabbi (or a title) for they were all “just brethren”.

I see so many churches with all these rules and regulations and talking about pastoral authority. But if you read Jesus words you will find that he says to not elevate themselves and that they are as low as the lowest person they talk to. I truly believe this is where man inserts themselves in the word of God when they make up all these rules and insist women are below man, etc. I have personal beliefs on what I do and do not accept or believe in but those are mine and it is not my job to force others to believe how I do..

Now, I go to a tiny church but I do not advocate all the things the pastor says because it goes against what I have learned. But, it is also part of enjoying fellowship with other believers. This little church is a tiny one room church. A lot of what we do is study the Bible which is what we are supposed to do. I do not call myself a Baptist, Methodist, Presbyterian, Catholic, etc. I just call myself a follower of Christ. I do not believe in forcing my beliefs on others and I do not believe in judging others. And I do not argue with people over “Religion”.  That to me is forcing “man’s view” on others. I would rather just tell them if they want to hear about how God has affected my life.

April 5, 2017 Posted by | Inspiration, Personal opinions | , , , , , | Leave a comment

Kindness

simply danLrenes opinion

Kindness is one of the things that we can freely give just as love is. And yet, so many today are withholding kindness, resorting to name calling, hatred, denigration etc. And many of them are the ones that will site that they did a random act of kindness by buying someone a cup of coffee.

When was the last time people served in a soup kitchen? I did before my health got so bad and I served on forearm crutches. I loved it. I met some really special people. When was the last time people noticed someone really hurting and reached out to them even if just to say “can I help you?”

When was the last time people took dinner to a shut-in or just visited. Being shut in can be very lonely and company is so wonderful to have. When was the last time someone you knew just lost a loved one and was having to head to the funeral home to make arrangements and you offered to go with them?

Kindness should not be random. It should be all the time. A smile is kindness, a greeting can be kindness and just showing you care can be kindness.  A card sent to someone sick is kindness. We live in a crazy, crazy world where everyone is rush, rush, rush. And I want to say what are you rushing for? Slow down and really take a look around you. I see people who are ignoring their children because they would rather be on social media. Or children ignoring their elderly parents or sick parents because they just don’t want to be bothered.

We only have so long on this world and no one is guaranteed a tomorrow. So, we should make the best of every day and spread kindness and love. There is a quote I love for it says it all. I try to live this way.  I hope it touches your heart like it touched mine.

“I shall pass through this world but once. Any good therefore that I can do or any kindness that I can show to any human being, let me do it now. Let me not defer or neglect it, for I shall not pass this way again.”

Stephen Grellet

March 29, 2017 Posted by | Inspiration | 2 Comments

You-tube and Children

This is a topic that lies dear to my heart because it involves children. There are a lot of vloggers on You-tube and I enjoy watching some of them but what bothers me is that You-tube has an age limit of 13 to be able to be on You-tube and yet you will find kids as young as 7 years old commenting on these vlogs. And while some are just hooked on watching the vloggers, other young tweens (7-12) and young teens are on just to bully and harass and I think the parents would be shocked to see what they are doing.

I often wonder if parents even know what their kids are doing on those smart phones that they give them. I wonder do they realize that these kids are able to watch very inappropriate vlogs that have very vulgar and even sexually oriented content.

I believe this is one of the causes of kids dropping out of school for I see so many posting how they can not wait to get pregnant and quit school and make money on You-tube and they do. I have seen channels started by pregnant 13 and up kids who are not really ready to be a parent and have no education.

Although there are some family oriented vloggers, I personally would not want my child to pretend to be sick so they could stay home from school and watch their favorite vloggers, or to take their smart phones to the bathroom at school so they could watch or to become pregnant because they saw it on You-tube vlogs. There was a situation recently where a vlogger was walking in a store with another vlogger and a young girl saw her and ran up and hugged her. Her mother was like “Stop! Stop! Who are you?” to the vlogger.  And that told me right there that parents do not pay attention to what their children are watching on the internet.

I personally think that You-tube should enforce their age limits and should also make the age limit higher to have a channel on You-tube. I read some of the comments written by these young kids and they are just hooked on watching these vloggers. They even send gifts, etc to these vloggers. And I think parents should start being diligent on this because this is another way that predators find our children.

March 27, 2017 Posted by | Inspiration | Leave a comment

The Truth About #StandingRock

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Today I am writing about a topic that is very close to my heart. If I could be there in person instead of this hospital bed, I would be. Most people do not know the truth on Standing Rock and do not take the time to look it up and find the truth. They just take mainstream media and local media’s word for it and they are nothing but echo chambers for the parties they stand for.

My intentions were to just tell the story and show the video but after what the so-called Law Enforcement did the other night spraying water on the Indigenous Peoples when it was 23 degrees and throwing concussion grenades at the people and injuring one woman horribly. Her arm was blown open and they still do not know if they can save it. So I am going to post the videos and this may take several blogs to do it. Please, if you care about people and our country, take the time to look at them and see how the Governor of North Dakota and the Sheriff of Morton County and others are lying about what is happening.

They are saying the water protectors are rioters and violent protestors and yet the Native Americans have no weapons and are praying and singing. It is thanks to the Governor and to the Sheriff using military equipment to try to force this pipeline through. Now remember, that this Energy Transfer company said they had only had 2 oil spills in the past couple of years. NOT TRUE.  There have been about 260 oil spills in the past two years. Do you see why the Indigenous peoples are fighting to save the water which also will lead downstream to other states? Just think of Flint Michigan and the contamination of the water there.

So, let me start with this blog showing some videos and I will add more in the morning.

video by TYT Politics

I am proud people are standing up against this and wanting to save our earth and water.

Listen to the conversation between a Morton County official and a woman who called for help the night the Oil Company law enforcement was spraying them with water and they were getting hypothermia. Absolutely no help at all. She asked them who was she supposed to call to save people from the police. No Answer.

The Governor said that the Indigenous Peoples were attacking the officers. Sorry but the Natives have no weapons. It is the officers with huge mace containers, tear gas, billy clubs, water cannons, etc. The Governor also said the people were attacking officers but the videos done right there at the Standing Rock place during this time shows that is not true.

Here are some videos to show for now. Some will show with a picture and some show just as links.

http://www.nbcnews.com/slideshow/dakota-pipeline-protesters-drenched-water-cannons-n686721

Attacking with dogs. They did that in the sixties to the Blacks. Remember?

PLEASE REMEMBER:

world

 image from https://www.flickr.com/photos/mysticpolitics/6661549795

November 24, 2016 Posted by | All, Inspiration, Uncategorized | , , , , , , , | Leave a comment

Waiting on Election To Be Over To Blog Again

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Just to let you all know that I am still here and will be blogging again very soon. Have been having more medical issues but I am hanging in there.

I have been waiting for this election to be over and done as I am just so sick of all the hate rhetoric and nasty stuff being circulated out there on the internet.

I wish people would realize that no one has to vote just like you do. We all have our own choice and the right to make that choice as we want. I have seen some horrible bullying and just backed away for a while.

See you all in a few days. 🙂   Dani

November 8, 2016 Posted by | Inspiration | , , , | Leave a comment

Always Love When I Learn Something New

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Life is a continuous state of learning if we choose to learn. I love learning new things and reading on new, innovative things. Being chronically ill and in severe pain a lot, researching on the internet gives me an outlet when I can not do much more than lay here. It also helps distract me as I use alternative methods for my pain along with traditional methods to try and deal with such severe pain.

I went to the doctor for the severe pain in my feet and I mean severe. As I told the doctor, just touching or barely bumping my feet on something feels like someone is trying to saw my foot or my toes off with a dull saw. It really is horrific and has made life quite difficult for the past months. This doctor checked my feet and we talked about what I had been diagnosed with, which Neuropathy was one of the things, what had already been used and we discussed a few things he wanted to try plus he wants me to see a vascular doctor.

Now this is where the learning came in.  I mentioned a few of the things my pain specialist uses to try to help my pain which two of them are Voltaren gel and Lidocaine gel. I use the Voltaren on many different areas of my body but the Lidocaine I was using solely on my feet along with my medications.  So, this doctor recommended me using a “specialty pharmacy” and having them create a cream made just for me and my problems. I had never heard of a specialty pharmacy and so looked it up when I got home. Meanwhile, my doctor was contacting one to create this cream for my feet.

A specialty pharmacy according to this website https://www.pharmacist.com/specialty-pharmacy says that a Specialty Pharmacy “focuses on high cost, high touch medication therapy for patients with complex disease states. Medications in specialty pharmacy range from oral to cutting edge injectable and biologic products. The disease states treated range from cancer, multiple sclerosis and rheumatoid arthritis to rare genetic conditions.”   I was impressed. I knew many countries go to a compounding Pharmacist who makes their medicine right there instead of a bottle from a pharmacy company like here.

One of my biggest problems with taking more pills to help the pain was that I have a large ulcer and three or four smaller ones so I can not take certain medications by mouth. For example, one medicine they use for nerve pain is Neurontin or Gabapentin which is the generic. So, I could see where my doctor was going. He wanted something I could apply directly to the pain instead of just swallowing it and it affecting my whole body.

I get a call a few days later from the Specialty Pharmacy telling me they had made my cream and would be shipping it to me and it was covered by my insurance. That was a huge worry for me as some things that are “different” insurance will not cover. The day I got it, I read all the instructions and it was created where I just pumped the container twice for each foot and it gave me an exact amount. This cream contains Gabapentin, Lidocaine and some other ingredients.

Not expecting great results I applied it to my feet that night and what the medicine is supposed to do is block the signal as much as possible of pain that my feet were sending to my brain. I actually slept that night better than ever and I apply this every six hours. Just to tell you how much it helped, shortly before it is time again, I could feel the pain again and it was horrible. I reapplied and it went down again but I kept thinking wow, that pain is so horrific I do not know how I was standing it.

No, my pain is not all disappeared as I have joint pain, muscle pain, nerve pain from my spine and like building blocks, what this cream did was help remove one area of pain which makes my over all pain level better. So, if you are like me and have a lot of pain but can not take some of the medicines orally that they use for pain, try asking your doctor about Specialty Pharmacies and maybe they can create something just for you that might help. They deal with some of the worst diseases like cancer, MS, RA and other extremely painful conditions and because I have so many things wrong, they were an answer from God for me. And I learned something new.

September 25, 2016 Posted by | Inspiration | Leave a comment

I Am Not Into Conspiracy Theories, BUT….

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Now, let me start off by saying that I am not into conspiracy theories, BUT there comes a time when you have to wonder. I am sure everyone has been seeing all the theories on HRC and what is wrong with her and is she using body doubles because she is so sick. I saw the video of her collapse at the Memorial service and the seizure like episodes and that is not normal health.

Let me clarify something before I talk about all of this. I am not a Democrat nor am I a Republican but I am definitely an American. I vote by the person not by party. When people ask me what I am I always tell them I am an American. I personally hate “parties” and think they have been the downfall of our country.

So, back to the conspiracy theories out there. People and a lot of people believe they are using body doubles for HRC and have gone to great lengths to try to prove their point. They go by eye color, by hair, by weight, by her hands, by her smile and her wrinkles and the list goes on. Some of them have great points but you still never know truth from fiction.

These are the things that make me think that HRC is critically ill and that the Democrats are trying to hide it. First off, main stream media avoids mentioning anything about all these health issues even when they are quite obvious. If there is nothing to hide, why hide it. The videos I have seen of her appearing to have seizures, the blue glasses, the collapse to where they literally threw her in the van leaving her shoe behind tell me something is bad wrong with HRC. Why are they hiding it, why is she avoiding the media, why is she having all these spells? And all through all the coverage that is done by individuals and smaller news media, my mind is screaming “Does NO ONE care about this woman’s health????”  That is what bothers me.

So then I have to ask are the Democrats, the Clintons and everyone around her so determined to get her into office even though she is very ill that they would lie and hide things? Of course we know politicians lie so that answers my question but I just can not fathom that Chelsea and Bill love HRC so little that they would let her be treated like luggage, led around by a handler, doubles used for her and her even being reported that she was dead. So, what is going on here?

I have a video. There are many of them out there on you tube. Just look for them. But this one makes valid points with pictures of HRC.  So, I ask you to please with an open mind watch the video and do not fall into cult like mode where you will defend anything and everything. We have brains and we have reasoning powers. Some we can say oh just conspiracy theories. But a lot like how does Hillary change weight within a couple of hours, how does she go from wrinkled on her neck and face to a firm neck and barely any wrinkles, from blue-eyed to brown-eyed and back are things I think anyone with any sense would say what is going on here.

I do not mind anyone disagreeing with me but I ask that no hate and attacking be done. We will never come together as a country if we remain so divided that we are not willing to listen to things that are happening and I want someone, ANYONE to care about her health. I may not have been for her as President but I definitely am for her as a human being and what I have seen is horrific for her to go through. Can we put politics aside and look at HRC as a human being who deserves to be treated right and taken care of health wise?

 Video by Aggroed Lighthacker

 

 

 

 

 

September 23, 2016 Posted by | Inspiration | , , , , , | 2 Comments

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